Friday, October 16, 2009

A step closer.

Today we had a doc appt with both the hemtologist and the BMT doctor. His platelets have stayed at 41000 which is GREAT!! They ran a immune test on his B-cells today and will do his T-cells in 2 weeks. We should have the results to the B-cell test by then. They wanted to start him on bactrim but since Coty (my husband, Kyler's dad) is HIGHLY allergic to it they chose not to risk it with Kyler and put him on dapsone (I will fix it if that is spelled incorrectly..I dont have the script in front of me). The stem cell doc wants to do something within the next 6 months so..hopefully we can find a perfect match donor soon. So far the best we've found (given that Kyler has a rare HLA typing) is an 8/10 on a person and a 5/6 on a cord. He feels that if we dont find a better donor match we MIGHT consider the cord, but there are 3 more donors coming in next week and 1 was tested today, so he is going to wait a few more months to try to find a perfect 10/10 match on a donor. Please Pray that we find a match!! We got a ton of more info today but that covers the majority of it. He did absolutely wonderful during his blood work. He laughed at his ducky :-) and held his blanky. He weighs 18lb 9 oz and is 26 1/2 inches long. Great blood pressure and temp. Other than that he is doing GREAT. We raised his dose on Zantac which seems to be helping with the fits he was having from hurting and his tummy problems seem to be getting much better and he is now eating baby food 3 times a day and drinks a ton of formula in between feedings so he is very healthy in that aspect. We have another appt in 2 weeks but if we find something out before then I will update. usual Coty and I were each only a 5/10 not a good idea! Please Pray for Kyler and Pray we find a perfect 10/10 match! Love you guys!!

Tuesday, October 6, 2009

Fridays Results

We went to Kyler's hematologist last friday Oct. 2nd. and we all three had to have lab work done. I must admit that Kyler did the best of all of us. I tried to keep him from looking but he watched the needle go in and the blood come out and never even whined. OH ...and he didn't even want to hold his silky (blanket). Coty didn't do so well..but he never does with blood. He really gets sick when they have to take it. I was nervous but nothing like I use to be. After everything I went through during my pregnancy I'm pretty sure not much bothers me. I still can't watch the needle go in but I don't mind watching the blood. Anyways...we did that so they could check out HLA typing and hopefully we'll have the results in a couple of weeks.
Kyler's platelets have came down to 41,000 but everything else looks good. They did some test to check his liver and kidneys and everything looked great. He weighs 18lbs and is 26 inch long. He is getting soo big! That is all we found out..we'll be meeting the new stem cell doc in 2 weeks so we will have more info then.Please Keep Kyler in Your Prayers!