tag:blogger.com,1999:blog-377006603824457967.post5400380534578476079..comments2012-08-27T18:13:47.833-07:00Comments on Kyler and Wiskott Aldrich Syndrome: Day +18 GREAT day!Kyler's Mommyhttp://www.blogger.com/profile/11246466784838432382noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-377006603824457967.post-35993331953775542862010-03-29T18:43:24.624-07:002010-03-29T18:43:24.624-07:00Hey Jill!
Yay! Great news! Yeah, Ayden complete...Hey Jill!<br /><br />Yay! Great news! Yeah, Ayden completely stopped taking a bottle while we were in the hospital with him. The problem was, he also wouldn't take a sippy cup. The ONLY way he would drink anything was when I dipped a straw in something and gave it to him a little at a time. Needless to say, with that plus only eating a few jars of baby food a day and refusing formula completely, he went home on TPN. He was probably on it for about 2 1/2 months after we got out of the hospital until he started taking a sippy cup and we mixed powdered formula into his baby food to get him the calories he needed (I think we did 2 scoops per 4 oz. jar). The chemo can make things they used to like taste weird to them and it takes a while for that to wear off. It's a struggle, but don't get discouraged. Hopefully Kyler won't make that part as difficult for you as Ayden did for us! :-D<br /><br />Here's hoping today was Engraftment Day!!!Paigehttps://www.blogger.com/profile/14600919321398579141noreply@blogger.comtag:blogger.com,1999:blog-377006603824457967.post-51638088019164928182010-03-29T12:25:24.076-07:002010-03-29T12:25:24.076-07:00Hi Jill,
Great news indeed! So glad that little ...Hi Jill,<br /><br />Great news indeed! So glad that little Ky's counts are coming up and that his fevers are gone. Glad that you are able to enjoy your little one smiling again! <br /><br />Keep the good news coming.<br /><br />Best Wishes,<br /><br />SumathiSumathihttps://www.blogger.com/profile/12027074463385778095noreply@blogger.com