more BMT pics

transplant pics. Way Overdue!

Just some pics

So far so Good! :)

WOW!! It has been a while since I have updated. SO much has happened...but Ill just try to keep it to the basics.
First I'll talk about health related issues: Kyler is doing great! He is being weaned off of his immune suppresants and is down to 2 meds during the week and 4 on the weekend (still has Bactrim and Zofran on wknd). The results from his immune tests were MUCH better than they were 3 months ago. Still not 100% but MUCH better :) Everything else seems to be moving right along perfectly. Its amazing to see my little boy with 400K platelets. He can play as rough as he wants and I dont have to worry as much.
Now..The Fun info ...He is growing up soo fast and he is soo funny!! He is learning to say the most hilarious stuff!! He is almost walking...He gets excited and starts running and falls down. He is doing great though pushing his little push and walk toy. He is still just as amazing as ever!! I am soo proud of him and love him so much!!
Other than that there isnt much else...well, there is..but I said I was keeping it short! I could talk about my sweet little man ALL day!! :) He keeps us laughing!! I am going to attempt to include a photo..There are TONS so I am going to just pick a good one (Well, to mommy they are ALL good :) )

Back home..

We came back home last wednesday, after a week and 1/2 in the hospital. Kyler had his double lumen (CVL) removed and had a port put in. He had ups and downs with fever but after about a week his fevers stopped. He started eating and feeling better so we got to come home with oral antibiotics. He still doesnt feel completely like himself but hes getting there. Its taking a while to get him to crawl/ try to walk but we are definately making progress. He is eating GREAT!! Even better than he was before we went into the hospital this time. Hopefully having the port will cut down on the chance of him catching another infection like that. We are praying that that was his last inpatient visit to the hospital. We go back to the doctor Thursday so we will know how much his counts have came back up etc. He is still just as sweet as ever. please keep him in your prayers.

Back at Childrens

Sunday night at 11pm our sweet baby Kyler started vomiting....well, like I always do when he seems outof sorts, I checked his temp. It was high for him but not fever yet so I continued checking it and by 11:15pm he had thrown up several times and his fever was 100.7 so we brought him into childrens. By the time we got here his temp was already 102.8 and they did cultures which had already grown by 2am. He had a gram negative (not sure exactly what yet bc results arent complete) infection in his line and blood. They started him on 3 very strong antibiotics and yesterday (monday) they did surgery and pulled the line. He now has IV's in both feet and one in his arm. He has had constant high temps and has been a miserable little boy up until a few hours ago. His heart rate was super high the first night but it had went down by last night. The nurse and I sponge bathed him and changed all of his bedding and then I finally got to hold him for the first time since sunday night (which I slept with him all night sunday night both in his bed and on my cot. He wouldnt even lay down that night unless he could atleast touch my hand or something) ...after his bath and everything he sat on my lap and we went to the window and I opened it so he could see out. Then he fell asleep on me and when he woke up he smiled and said hey momma...and then said dadda and looked around like he was looking for his daddy. That is the first time he has talked (other than when he has cried for his mommy when they are doing stuff to him which breaks my heart bc I cant make it just go away) since sunday and he even smiled and giggled a little.HOPEFULLY things are headed up from here on out. As always, he has been so strong. Please keep him in your prayers.

Day+101

Quick update. Most things are going great with Kyler. However he has a rash on his back chest stomach and legs that they thought was GVHD. Well, the one on his back is infected with staph and possibly also has a viral infection in it (the rash). We will be finding out the final results on thursday and if it is viral we will be admitted to the hospital for strong antibiotics. Right now he is home with strong antibiotics.
Other than that he is doing great! He is still working on walking and is doing great pulling up and attempting to walk. We are so proud of him. He is so happy and sweet.
Not much else health wise has changed. He does have 317K platelets now which is GREAT!! We are super excited about that. Well, I will try to update when I find out any more results. Please keep him in your prayers.