Tuesday, August 25, 2009

So we FINALLY got news..and good news at that. We found out that some of the donors have responded and we should hopefully be finding out something at Kyler's next appointment (which will be next monday.) YAY!! =) Okay I know I am probably going to sound paranoid but I am sooo worried about this whole swine flu thing. So many children around my area have had it and 20 people had to check out of a school nearby with it. I am sooooo afraid of him catching it so I have personally put him and me on house arrest. The only thing is, though, that my husband still has to work so he will still be out there around all of this. But hopefully by Kyler and me not going anywhere that will help cut down on his chances of getting it. I am really worried about it though. Everyone PLEASE pray that he doesnt!!

Tuesday, August 18, 2009

I forgot to mention...

I forgot to tell everyone yesterday but the results came back on my tests and it turns out that I am not the carrier or WAS. So there is a 97 % chance that Kyler didnt get it from me. It was more than likely a spontaneous malformation of his X chromosome. That means that we can have more children who more than likely would not have WAS. They did suggest, though, that we have any future children tested for it just to be sure.
Also, at our wedding this past saturday Kyler helped hold the rings and it was soo cute..he did such a great job!! He is also trying to sit up on his own! Hes growing up toooo fast!

Monday, August 17, 2009

More News....

Today we went to see Kyler's Hematologist because he wants to keep a check on his blood levels. Well his platelets are down to 49,000 but they dont want to start blood transfusions yet because they dont want to introduce to many antibodies to his system. The doctor said he looks great and he doesnt have any active bleeding and so far hasnt had any bad bruises (which is great considering that he is starting to play rough and kick and throw his self around) so they dont feel like he needs tranfusions just yet. He did great again today having his blood taken. He didnt laugh like last time because he was getting really sleepy but he didnt cry or whine or try to pull away and they had to take it from his hand which usually hurts him. I just feel like mentioning how perfect and sweet and good my little boy is. All of the nurses and doctors talk about how outgoing and good he is and they have all fell inlove with him which makes his appointments more fun for him. One of the nurses even calls him "her little boyfriend." Hes a BIG flirt already :) But..other than his blood levels I dont have any more news..The stem cell nurse said that so far they havent heard anything else about the donors so they more than likely havent gotten back intouch with the association. Hopefully Ill have more news soon! Until then (and even after) Keep him in your prayers :)

Wednesday, August 5, 2009

Good News!!

Monday Kyler had a check up to see where his platelet levels are..well his platelets have came down to 56,000 which isnt great but isnt horrible either. We just have to make sure he doesnt bump his head. The good news is that we found out that they have found a few "potential" donors so now we are just waiting to see if any of them work out. Another GREAT thing was that monday when he had his blood work done he laughed soo hard the entire time and it was like he never felt the needle or anything. He had the nurse and me laughing so hard we couldnt breath. It made my whole day perfect because he didnt seem to feel any pain. You wouldve thought she was tickling him rather than sticking him. I just want to mention again how greatful I am to every one thinking about him and praying for him...I really believe that monday it wasnt just a coincidence that he didnt seem to feel pain because he usually screams and cries. I know every ones prayers are being heard and I really believe that monday was God's work. I will update the blog when we know for sure we have a donor but in the meantime please keep him in your prayers.