Tuesday, July 27, 2010
We came back home last wednesday, after a week and 1/2 in the hospital. Kyler had his double lumen (CVL) removed and had a port put in. He had ups and downs with fever but after about a week his fevers stopped. He started eating and feeling better so we got to come home with oral antibiotics. He still doesnt feel completely like himself but hes getting there. Its taking a while to get him to crawl/ try to walk but we are definately making progress. He is eating GREAT!! Even better than he was before we went into the hospital this time. Hopefully having the port will cut down on the chance of him catching another infection like that. We are praying that that was his last inpatient visit to the hospital. We go back to the doctor Thursday so we will know how much his counts have came back up etc. He is still just as sweet as ever. please keep him in your prayers.
Tuesday, July 13, 2010
Sunday night at 11pm our sweet baby Kyler started vomiting....well, like I always do when he seems outof sorts, I checked his temp. It was high for him but not fever yet so I continued checking it and by 11:15pm he had thrown up several times and his fever was 100.7 so we brought him into childrens. By the time we got here his temp was already 102.8 and they did cultures which had already grown by 2am. He had a gram negative (not sure exactly what yet bc results arent complete) infection in his line and blood. They started him on 3 very strong antibiotics and yesterday (monday) they did surgery and pulled the line. He now has IV's in both feet and one in his arm. He has had constant high temps and has been a miserable little boy up until a few hours ago. His heart rate was super high the first night but it had went down by last night. The nurse and I sponge bathed him and changed all of his bedding and then I finally got to hold him for the first time since sunday night (which I slept with him all night sunday night both in his bed and on my cot. He wouldnt even lay down that night unless he could atleast touch my hand or something) ...after his bath and everything he sat on my lap and we went to the window and I opened it so he could see out. Then he fell asleep on me and when he woke up he smiled and said hey momma...and then said dadda and looked around like he was looking for his daddy. That is the first time he has talked (other than when he has cried for his mommy when they are doing stuff to him which breaks my heart bc I cant make it just go away) since sunday and he even smiled and giggled a little.HOPEFULLY things are headed up from here on out. As always, he has been so strong. Please keep him in your prayers.