Saturday, January 1, 2011

January 1st 2011

Hi everyone! Thought I would start the New Year out with an update on my little man Kyler. Firts of all, he is off of ALL his meds except IVIG, bactrim on weekends and megace (his appetite stimulant). So far he is doing really great! His immune system function test came back great. One part of his immune system (immediate response I believe it was) is still lower than normal but the rest is doing great. He does have a few signs of GVHD such as slightly elevated BUN and EOS but he isnt showing any other signs of it. We really hope he doesnt have it. Right now the doctors are just watching for any further signs. If everything continues going well then he should have his post transplant tests done, Last dose of IVIG and port out in March and he can finally experience all of the things kids his age get to experience. We cant wait for him to get to play with other kids :)
We all had a GREAT Christmas. His room looks like Toys R Us exploded in it and I LOVE it!! Im so glad he had a huge, fun Christmas. He definately deserves it.
He is walking GREAT now and has started eating only real foods (no more baby food) and we are about to start getting serious about potty training. Im hoping it goes better than I think its going to :) We are so proud of him and love him so much!! Cant believe he will be 1 yr post transplant in 2 months and 2 yrs old in 3 and 1/2 months. Hes growing up too fast!! OH!! And he told me today for the first time that he loved me. He held my face in his hands and said "I lu you momma" and kissed me on the cheek! SOOO SWEET!!! :) I love him so!! <3


  1. Hi Jill,

    Good to hear that things are going well for Ky and that he is off most of his meds!!

    Best Wishes to a very happy and healthy New year.



  2. Joyous news to warm many hearts.