Friday, November 13, 2009

Friday Nov 13th

Well..The good news is Kylers platelet are up to 50, bumps on the head are still a concern, but not as much of one. Bad news is his t-cells came back low which means his immune system isnt functioning like it should. He had a great appointment though. He did awesome with his bloodwork as always..and flirted with all the ladies :-)) He a little charmer :-D Still no luck with a donor. Tons of 8/10 matches but childrens wont attempt it until it is a 9/10. We have a cord but since I am not thrilled about cords the doctor decided to wait until after the holidays before he starts trying to persuade us to use the cord. Please pray we find a donor before then! We would like a 10/10 but at this point would be happy with a 9/10. Ok..Now just an extra note..I just want to mention that I know a lot of people miss Kyler and would like to see him. We ARE NOT keeping him away from people to be mean..we are doing it for his health and safety..and this is what we were told to do by doctors because of the flu situation and it being the time of year for many other illnesses. We promise that as soon as Kyler is all better everyone can love on him and give him all of the hugs and kisses they want. Until then..we just hope you understand that our baby is the most important thing in the world to us and I will do whatever it takes to keep him healthy. :-D Thank you to EVERYONE who has been praying for Kyler and being there for us..and thank you to those who have been so understanding :-D We love you all! Please Keep him in your prayers :-D I probably wont have updates for around 4 weeks but if anything happens before then I will let you know. OH and just some Kyler updates..He sits up on his own.. says mommom..knows that when I hand him the phone he is supposed to start talking LOL..and he is the sweetest most precious baby! He is my whole world and I am soo lucky to be his mommy! OH and he is just a little bit rotten :-D But that was to be expected LOL. Until next time..Please keep praying for him :-)


  1. Well Done Kyler! Just have a question for you. Why are you so against cord blood? We have a cord blood match for Max which we will be using. We have always been told that cord blood is far better than bone marrow as it hasn't been exposed to ANYTHING (unlike bone marrow) and also due to this the risk of GVHD is reduced emormously. The ONLY down fall is the fact that there is a... Read More finite amount of the cord blood, so IF they needed more, they wouldn't have it. BUT in children (up to 5) the amount of cord blood is enough due to their small size.....

  2. Hello! I learned about your story from my cousin who's little boy had a transplant earlier this year. I'm not sure if you know or not, it's free for people to sign up on the registry from now until the end of the year. Maybe you could pass this info along to one of the local news outlets and get them to do a story about Kyler and hopefully find a match for him. Good luck!

    Jawana Root