So far Kyler has done really well. He started getting nauseated from the chemo night before last (tues night) and has thrown up 3 times. He seems to feel good though. He plays and laughs and has actually done a few things since we've been here that he didnt do before. He pulls up onto his knees in his bed and has almost pulled up onto his feet once. He now says "Yeah" which has become his new answer to everything instead of "No-no" like it was LOL :) He is able to play on the floor without his helmet here so his mobile skills are getting much better. They came and scored him and he scored 10 months on mobility and 12months on verbal and understanding. The nurses all love him and he does so good with things that they said most kids fight against like: Vitals,mouth care, and drinking the nystatin. He had a bad night the first night but only bc he wasnt use to having fluids flowing through his line and he didnt like the taste or feel of it. Since then he has done great with it. He sits in his bed and plays during the 2 hours of chemo and doesnt fuss. Its like he understands when I tell him he needs to sit there and play so that the monitor will pick up his heart rate and oxygen levels good. I am so proud of him. I love him so much.
Now some medical things. Tomorrow is his last day of busulfan and then we will start cytoxin then ATG. He is currently on acyclovir to help prevent viruses, dilantin for seizures, zantac for reflux, zofran for nausea and benadryl as needed for nausea. His counts are as expected. I will try to update next week or so. Please keep him in your prayers.